A few weeks ago, my sister and I were in the lounge after dinner trying to unwind after work when she suddenly asked me… “How can you take a nap?” She looked at me with a blank curiosity in her face. ” I can never take a nap…” she continued. I knew she was asking … Continue reading stuck between compassion and pity
I’ve recently found two things that to has helped me with frosty fingers… it will sound silly, I know… but keep a silly, open mind and try it some time! My raynauds gets really bad in winter, basically my fingertips turn white and blue… and both of hands are basically 80-90% always VERY COLD!!! I … Continue reading winter warrior #2 – Raynaud’s Syndrome
Winter is extremely challenging. As the weather gets colder, my chilblains started appearing all over my hands and fingers… It’s getting a lot worse now, but not quite as bad as it was last year… where every single finger is sore and painful with bumps. Here is what works for me: Last year, my beloved … Continue reading winter warrior #1 – lupus chilblains
Driving home tonight… I suddenly remembered why I decided to embark on this journey of putting together Lupus Care Pack and trying to give it away for my fellow lupies. I remembered one night I was lying in bed in the dark… my body was so exhausted to the bone. My heart felt so weak, … Continue reading why the care pack?
Apparently it was my annual review. I wasn’t aware of this until I arrived to the clinic, had myself weighed and blood pressure checked. “… you won’t have to wait long, you’ll be seen straight away” the nurse told me. Oh yeah, that’s great news, I said to myself. Just before I walked back to … Continue reading the annual review
I feel like I have betrayed my own body. I sat there in the kitchen with a slump; my whole body felt like it did not belong to me. It ached. I felt feverish，lethargic. My chest felt funny… It wasn’t the usual chest pain that I normally feel… It felt like my heart was too … Continue reading Fall
Something that has been on my mind lately is whether sharing myself openly to the world about having Lupus is the “right” decision. I’ve always been a private person. An introvert at heart. It’s much easier to write here on the blog than to really speak up in the open. I don’t like drawing attention … Continue reading To say or not to say …