I’ve always been traveller. It must be my dad’s influence. Ever since we were young, he always took us on various road trips. Although he’s not travelled much elsewhere apart from Asian countries, America and Australia… and he also has his reservations whenever I declared that I am going to a different, slightly off-road, hippie travel destinations.
Early next week, I will be embarking on a family reunion trip overseas for 10 days. This will be the second overseas trip I’ve had since I was diagnosed with Lupus in 2015. The first time was Japan… it wasn’t bad at all. I think mostly because I was also on high dose of steroids, I feel somewhat protected… like I will not be breaking down with fatigue and becoming party pooper for everyone. Even though, of course, the truth is that the steroid is damaging every single healthy cells in my body while keeping me alive and standing.
Secondly, Japan is a very clean and hygienic country. I feel safe and assured about not getting food poisoning.
Where I am going now though… is different. It’s not as clean. A colleague, who’s born there, told me that she doesn’t even eat the hawker foods but stick to the restaurants…
This trip has put me over the edge…
I love food. So. Much. Food is what makes me happy at any given time. What’s more is that, I love street food. But going there with Lupus… am on low dose steroids now and quite stable; am currently what the researchers would classify as having clinical remission… I feel terrified and already isolated.
It will be summer too and I heard it’s going to be really hot. I am scared of the sun, but also the heat because it wears me out even more.
I am so terrified that I already spent $200 on high SPF protective clothing and hat…
I still have not packed my Lupus gear… this is just a picture of the medications I will take for the trip. I don’t consume all of them, but these are the main ones that would keep me alive and at bay in case I do become unwell.
Sigh… Having Fun while Having Lupus is a really really Expensive ordeal.
It really sucks how intricately complicated Lupus has made every single aspect of my life……..
I am truly exhausted by it all.