Driving home tonight… I suddenly remembered why I decided to embark on this journey of putting together Lupus Care Pack and trying to give it away for my fellow lupies. I remembered one night I was lying in bed in the dark… my body was so exhausted to the bone. My heart felt so weak, … Continue reading why the care pack?
Apparently it was my annual review. I wasn’t aware of this until I arrived to the clinic, had myself weighed and blood pressure checked. “… you won’t have to wait long, you’ll be seen straight away” the nurse told me. Oh yeah, that’s great news, I said to myself. Just before I walked back to … Continue reading the annual review
I feel like I have betrayed my own body. I sat there in the kitchen with a slump; my whole body felt like it did not belong to me. It ached. I felt feverish，lethargic. My chest felt funny… It wasn’t the usual chest pain that I normally feel… It felt like my heart was too … Continue reading Fall
Something that has been on my mind lately is whether sharing myself openly to the world about having Lupus is the “right” decision. I’ve always been a private person. An introvert at heart. It’s much easier to write here on the blog than to really speak up in the open. I don’t like drawing attention … Continue reading To say or not to say …
So,,, I SURVIVED!!! to tell you my story, once again. I reached home on Saturday morning after 24 hours travelling and transiting through airports. It has taken me three days to recover from the fatigue… Hmmm, one of the perks of having Lupus, I guess? I would have to say that the trip was another … Continue reading travel bugs… and the likes
I just need to keep reminding myself that there is a lot of GOOD out there. And that what I am doing is worth it. These two emails I received from two Lupies from USA; Austin and Tennessee. I felt bad but I had to tell them that I cannot deliver these goodies overseas… they … Continue reading to give and to receive
I’ve always been traveller. It must be my dad’s influence. Ever since we were young, he always took us on various road trips. Although he’s not travelled much elsewhere apart from Asian countries, America and Australia… and he also has his reservations whenever I declared that I am going to a different, slightly off-road, hippie … Continue reading A Lupie on Vacation